Resources

Inland Regional Center

http://inlandrc.org/

For the past 45 years, Inland Regional Center’s qualified and supportive employees strive daily to serve more than 32,000 individuals with developmental disabilities in San Bernardino and Riverside counties.  As the largest of the regional centers in the State of California, Inland Regional Center is a nonprofit, private community-based agency that is proud to help obtain services and support for our constituents. Our core values of independence, inclusion and empowerment are the foundation that drives all staff in interactions, provisions of services, and program planning processes. 

1365 S. Waterman Avenue
San Bernardino, CA 92408

Mailing Address: P.O. Box 19037
San Bernardino, CA 92423
Telephone: (909) 890-3000
Fax: (909) 890-3001
Website: http://www.inlandrc.org

The Inland Regional Center serves the counties of Riverside and San Bernardino. Field Office Riverside
1500 Iowa Avenue, Suite 100
Riverside, CA 92507
Telephone: (951) 826-2608
Fax: (951) 826-2609


Desert Arc

https://www.desertarc.org/

Desert Arc serves adults 18 and older with developmental disabilities, including autism, cerebral palsy, Down Syndrome, epilepsy, and other medical conditions. Many have multiple disabilities and 99% are low income and receive Social Security and Medicare benefits. Currently Desert Arc has more than 650 clients enrolled in various programs. In total, 900 clients are enrolled in all programs throughout the Coachella Valley and the Morongo Basis, and offers services to clients as far west as Temecula and as far east as Blythe. The client base of Desert Arc is growing at an average of 3-5% per year.With the goal of helping each client live as independently as possible, a broad array of programs and services tailored to the unique needs of each client are offered. They include: vocational training; job development; job placement and employment; independent living support with 24 hour emergency assistance; hot meals and nutrition; transportation; support and training for self help and independent living; case management and personalized coordination of client services; advocacy for client needs and community integration

(760) 346-1611 Monday-Friday 8am-5pm 

After Hours Emergency Contact (760) 346-1611 Ext: 9

National Down Syndrome Society

http://www.ndss.org/

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.  The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities 

Down Syndrome Diagnosis Network

http://www.dsdiagnosisnetwork.org/

A layer of support when it's needed most. The mission of DSDN is to connect, support, and provide accurate information for families with a Down syndrome diagnosis. DSDN envisions a world where families have unbiased and factual accurate diagnosis experiences, every time, through which they quickly know they're not alone. 

Facebook Down syndrome groups


This link has a comprehensive list of groups! http://www.meriahnichols.com/down-syndrome-groups/

LOCAL GROUPS: 

Down syndrome Society of the Desert

https://www.facebook.com/groups/145203565525614/?ref=group_cover

Down Syndrome Coachella Valley  See Me As I Am  (SMAIA)

(For families with a teenager and Ds)

https://www.facebook.com/groups/606931312836183/?ref=group_cover




High Hopes Dance Troupe

High Hopes Dance Troupe, a non-profit project of Starlight Dance Cares Foundation, is a class created specifically for/to the abilities of ages 16 years to adult with developmental disabilities. The class is taught by instructors who are students and the top dancers at the studio. They do routines, mostly to current hits and Disney movie theme songs. The routines are taught in segments for easy learning with new segments added on until they have a full routine.  High Hopes Dancers perform around the community on a limited basis, including Desert Arc events and senior centers during the holidays.  Our goal is to provide an atmosphere of fun and learning, to co-ordinate movement, create rhythm, increase memory, provide exercise, promote self-esteem and foster social interaction. They are challenged within their comfort zone, not pushed to the max that they feel defeated. Additionally, social events as dances or a day at an amusement venue throughout the year are held to enhance interpersonal relationships among their peers and the public in general.  Class is each Saturday from 9:00-9:45 am and runs from the first Saturday after Labor Day to the last Saturday in May with time off near holidays

highhopesdance@yahoo.com

Baseball Buddies

Baseball Buddies is a program for physically and emotionally challenged kids under the age of 18. Each player has a buddy that assists him or her with the playing game. 

760-3212681

https://www.facebook.com/Baseball-Buddies-Palm-Desert-Ca-270450676391820/?ref=page_internal


Angel View

http://www.angelview.org/

Angel View’s mission is helping children and adults with disabilities reach their maximum potential. Each year, we help hundreds of people make significant gains toward independence through three primary programs: Residential Care, Day Program and Angel View Outreach.  We accept clients without regard to race, color or national origin; we make every effort to accommodate our clients’ cultural and religious customs.

Administrative Offices

67625 E. Palm Canyon Dr.
Suite 7A

Cathedral City, CA 92234

t (760) 329-6471 f (760) 329-9024

Coachella Valley Autism Society

http://www.cvasa.org/

The Coachella Valley Autism Society of America (CVASA) exists to provide support for families of individuals with autism in the Coachella Valley and surrounding desert areas.The mission of CVASA is to promote lifelong access and opportunities for individuals within the autism spectrum and their families, to be fully included, participating members of their communities through advocacy, public awareness, education and research related to autism.We encourage families to maintain a positive outlook while acquiring knowledge and taking action to ensure the quality of educational and social programs for children with autism and related challenges.CVASA offers all of its programs and services at no-charge to individuals dealing with autism in the Coachella Valley.

Phone: 760-772-1000

77564 Country Club Dr.
Building B Suite 363
Palm Desert, CA 92211
coordinator@cvasa.org

United Cerebral Palsy of Inland Empire

http://ucpie.org/

What does UCP In-Home Respite care provide: 

  1. Personalized in-home care for your special needs family member
  2. Supervision and stimulation through age appropriate activities & monthly Individual Goals Plan
  3. Opportunities for individuals with developmental disabilities to gain new companionship and to have more positive interpersonal experiences.
  4. The families of individuals with special needs gain opportunities for self renewal without worry
  5. A viable alternative to out-of-home placement.

After School Program:

The Skill Builder’s after-school and summer programs help program participants develop and improve five vital skill areas:

  • Socialization
  • Independence
  • Communication
  • Safety
  • Health

This is accomplished through participation in typical after-school and summer programs through the help of small student to teacher ratios facilitated by UCPIE. Progress is made through a structured curriculum of community integration outings, educational activities, arts & crafts, technology, and UCPIE’s Be Fit program. The Be Fit program provides healthy choices instruction, healthy snacks, and 30 minutes of adaptive physical play per program day. The Skill Builder’s Program currently provides care for 66 children with special needs in the Coachella Valley. Programs operate twice a week during after-school hours and summer sessions for children age 7 to 22. For more information contact, Sandra Gramajo, Skill Builder’s Case Manager, at (310) 709-3936.

35-325 Date Palm Dr. Ste 139
Cathedral City, CA 92234

Phone: (760) 321-8184
Toll Free: (877) 512-2224
Email: info@ucpie.org

If i Need Help

https://ifineedhelp.org

Help For Our Loved Ones Who May Wander or Need Assistance! We Help Reunite those who might become lost or disoriented with their Families, Loved ones, and Caregivers using new and existing technologies in ways that are practical, easy to access and affordable.

Call (661) 524-6732

Sleep & Down syndrome

Sleep apnea affects between 2 to 5 percent of children. By comparison, it’s estimated that between 30 and 60 percent of children and up to 80 percent of adults with Down syndrome also have obstructive sleep apnea. One study found OSA in 31% of infants with Down syndrome.


https://www.tuck.com/down-syndrome-and-sleep/#sleep_disorders_and_down_syndrome

More to Come!

Special Olympics

Rubies All Star Action Team

Do you have any additional resources?